Three leading scleroderma advocacy and research organizations—Scleroderma Foundation, Scleroderma Research Foundation and Scleroderma Society of Canada— are teaming up again during June's Scleroderma Awareness Month.
June is Scleroderma Awareness Month
Scleroderma is a hard word to pronounce and a harder disease to endure.
Hard word. Harder Disease.
The campaign, "Hard word. Harder disease," is working to boost awareness and compel greater compassion for patients and their families.
Scleroderma is a crippling autoimmune disorder characterized by a thickening and hardening of the skin.
The theme touches on the difficulty of the word and the gravity of scleroderma, a rare disease with no known cause or cure.
It will run across partner Facebook and Twitter channels (#hardword) throughout the month of June, with visuals and copy that educate and challenge people to take a pledge to learn more, all leading to World Scleroderma Day on June 29.
"With the recent breakthroughs in research and the growing interest from industry, we are very optimistic about what the future holds for scleroderma patients," said Amy Hewitt, executive director of the Scleroderma Research Foundation.
What is Scleroderma?
Scleroderma is a crippling autoimmune disorder characterized by a thickening and hardening of the skin that is so severe, it steals away the use of patients' fingers, hands and limbs.
As it advances across their bodies, the uncontrolled growth of fibrous tissue can damage patients' hearts, lungs and other organs, often leading to a prolonged and painful death.
What Every Esthetician Needs to Know
Skin care professionals often come across clients with rare conditions that require a deeper level of knowledge, as well as the ability to adapt treatments when needed. Do you know what to do when your client has scleroderma?